I had a blood draw today and my count was 352,000, highest ever, so Doctor decided lets try and lower the Prednisone again, I was at 80mg daily now we are going to go down by 10mg weekly. Sounds good to me!! Caley goes for her first sleepover at Bills tonite and I in the meantime am still not talking to Steve!! I spent the night hanging with Carol and the DU!!
March 8,2011
I go in for Round 2 of Rituxin again in a different room with a new set of nurses!! This time they gave me the adavan again and out I went!! However this time I didn't have the little finger thing. I woke up around 1 and when the IV monitor beeped she said OK only one hour to go!! I was like really AWESOME!!!! We were done and on our way home by 3!!! I had a little bit of a headache but that was it!!! So it was successful again!!! That night Dr.Michaelis called and left me a message saying that maybe I didn't need to come in for our appointment tomorrow. She said she would call me back and let me know. In the meantime I decided to send her an email, in which I had a few questions about other things. One being the difficulty I was having breathing. Also I was concerned that I still haven't gotten my period, at one point they told me not to worry because it would probably be messed up because of the prednisone!! I had been on the depo shot and got my first period on November 26th and then I didn't get one in December at all and then I got it again on January16th and haven't had one since!! So the doctor sends me an email back to just come in for my appointment.
March 9,2011
We go in for the appointment and Dr.M asks me why I haven't taken a pregnancy test yet? I'm not sure really! I guess because you all told me that my period would be messed up so I didn't think it was a big deal. It was a huge deal to her because she was giving me Chemo and that could be very dangerous to a fetus! I'm not sure what my count was on this day but I was dropping my Prednisone down to 60mg daily for this week. I left and was told to go the drug store and get a test and call with the results. So we went and got one and then it was moms turn to go see her doctor, so in the bathroom at her Dr's office I took the test it was negative and we moved on. I called Steve and told him we had made up by now. Things were going pretty good now.
The birthday weekend began with moms birthday on Saturday and Joannes big surprise party on Sunday, it was a great weekend and all was good!!!
March 14,2011
I made an appointment with Dr.Reiger to discuss my breathing issues with him like Dr.M suggested. He decided to do a few things, a chest xray and an EKG along with taking some blood to run the HCG(pregnancy) test. He gave me an inhaler and this cool chamber thing that helps you get all of the medication when you hit the inhaler!! I was on my way for round 3 of Rituxin tomorrow!!
March 15,2011
Round 3 went great Dad dropped me off and they started me right away, I was asleep when mom got there!! Again I woke up around 1 and I was just about finished!! So It was a success!!!
The next day I was tired and decided to go back to sleep after I put Caley on the bus. My phone rang waking me up and it was Dr. Reiger calling he said that there was something in the radiologists report that I should have looked at again. Something about nodules up high by my heart. So he wanted me to have a CT Scan done, the cool thing is that this new Burr Ridge center is now open and I could have it done there!! SO I called for the appointment and got in on Friday!!
March 17,2011
ITS ST.PATTYS DAY AND ITS EVERY ONES BIRTHDAY!!!! The party was a great success I had a great time and enjoyed spending time with everyone! However by the end of the night I hadn't really drank anything but my head was killing me so bad I thought I was going to be sick!! I slept so much and really didn't even want to get Caley up for school but somehow I did and managed to get her there too!!! I went back to sleep even though I had the CT this afternoon I figured that I would get up sometime before my test!!! Steve took me for the test I was kinda nervous about! They started my IV while I was sitting in a chair so I guess I'm really getting good at this whole needle thing!!! I went in and out before I even knew it! The test was OK. Steve and I went and had lunch came home and hung out with Colleen. Sitting there it was about 5 and the phone rings its the Dr's office, OK breath Julie breath!! I answer and she says the test came back fine!!!! Awesome!!! So Caley is now going for her second sleepover at her dads house and its my dads birthday. So Bill picks up Caley and the rest of us go to Bonnies in Willow Springs for a fish fry, it was OK! The rest of the weekend went by without anything interesting!!!
March 21,2011
I have an appointment with Dr. Michaelis this afternoon and I have to have blood drawn first. They told me to get there an hour early but we didn't get there until 15 minutes early. I had the blood draw and checked in at about 2:40, 5 minutes early. Now it was time to wait and waiting with Steve was not fun!! For whatever reason we got into a huge fight about the stupidest things!!!! Anyway I go in to see the doctor and she says things are fine I ask what the count is she said well it did go down its at 149,000 but that's still good. I'm dropping the prednisone still I'm at 40mg daily now and she said go ahead and go down to 30mg tomorrow.
So now we are all caught up!!! Today I'm at 30mg Prednisone daily for this week, next Tuesday the 29th I go to have my count checked and as long as its above 100,000 I can go down to 20mg daily for the next two weeks! We decide that I'm done with the Rituxin as well!!! So for now things are good!! My legs are starting to feel better and I have stopped gaining weight!!! SO here's to things getting better!!! My count on the 29th was 82K, not sure exactly what we did after that.
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