February 21,2011

We have an appointment with Dr.Reiger because the hospital wanted a follow up with the PCP after the hospital stay.  SO we had a chance to chat with him again about the ITP and everything that was going on.  We discussed the possibility of the spleenectemy and maybe having a gastric bypass done at the same time. He thought it would be a great idea but it would be something to talk about with the surgeon as he wasn't sure if they do a two for one!!!  He also did some blood work to check my thyroid, which turned out fine. 

February 22,2011

We have our first appointment with Dr.S(extremely long name that I cant pronounce) at the Hickory Hills office.  She was the nicest Dr I have ever met!!  She came in and had already knew everything about me and had talked with Dr.Michaelis and everything.  She said she was going to monitor me and help me get off the Prednisone.  She ordered some blood work and we were off.  The blood test results for her came back and i have a Vitamin D deficiency so she put me on this super vitamin that I take on Sundays for the next ten weeks and then I will see her again!!!  In the meantime I am to take 1000iu of Vitamin D daily and 1200iu of Calcium daily, I try to remember but the second dose in the pm I allwayz forget!!!

So for now things seem to be OK, my count was at a good level I'm getting the Prednisone down I think I was at like 80mg daily here!!  My body was still not real good but I was being positive that we were on our way up!!!  That weekend Steve and I had a little tiff and I was real angry with him and decided I didn't want to talk to him anymore.  Sunday night I wasn't feeling real good, actually for the first time since having ITP I was COLD!!!!  I had on two blankets and I was still freezing!!  I had mom take my temp and it was fine i tried to sleep as much as I could and drifted off. 

February 28,2011

I was set to go in for a blood draw today but since I woke up and felt like a crap I thought I would call and see if I could get an appointment, which is a joke since its a Monday!!!  Mom took my temp and I was 100.1, not bad but a temp no doubt.  They said to just come down and see the nurse to have my pulse-ox checked after my blood is checked.  OK so we go have the blood drawn and I go down and tell them whats up.  Karen one of the other doctors which is funny that I only know her first name, has me sit in this chair and the nurse takes my vitals.  Karen tells me if your pulse-ox is low we are going have to admit you.   While we are waiting to get a reading on that down the hall comes Dr.Michaelis with not a good look on her face.  So I ask did you get my count yet?  She said yeah 32,000 I said fuck!!!  Then I said pardon my language but geez what happened?  Shes just perplexed and says I think we HAVE to do Rituxin again!!  Karen tells her my pulse-ox is at 93 she says fuck!!!  We all had a  little laugh and she has Karen walk me around that hall to see if it gets any better or any worse by walking.  So we go down and around the hall and we end up back by Dr.Michaelis office and she tells me you know we need to take care of this ITP before something else kills you!!!!  They decide my oxygen level was going to be OK but I needed to come back tomorrow and have the Rituxin!!  OK I guess because now you've thrown the you could die at me so fine if you think its safe ill try it!!!